MCAS & Ketotifen: My Experiences So Far

The Treatments

If you’ve been following this blog long, you’ll know that I stopped taking most of my mast cell medications a few months ago and started over, using the principals Dr. Afrin lays out in his book. Yes it sounds mad, but in my case I had to do it, as scary as it was. Until […]

December 31, 2017

Ketotifen For MCAS: The Good, The Bad & The Drowsy

The Treatments

After weeks and weeks (and weeks) of waiting, and waiting some more, and nearly giving up, my local compound pharmacist finally came through for me. We came up with a brilliant solution for my unique problem of being triggered by dairy, soy AND corn (and a million other things they use even in compounded medicines […]

December 15, 2017

MCAS & Medication: Ketotifen Is Available in the US?

The Treatments

After trying several mast cell disease medications now, some with better luck than others, and after taking Dr. Afrin’s advice to heart about not giving up until I’ve exhausted ALL of the treatments available (and there are many!), I’m ready to try something new in hopes that it will bring me relief from the MCAS […]

October 12, 2017