What Does Mast Cell Degranulation Feel Like?

The Disease

What does mast cell degranulation feel like? Regardless of how I am triggered (food, medicine, fumes, stress, etc) the symptoms are just about the same, to varying degrees. Sometimes I get a few and sometimes I get them all. This is a description of a “full blown” degranulation event (for me). The first thing I […]

November 27, 2017

The Tests May Be Normal But We’re Not

The Disease

My daughter was born with a good sized, raised, reddish brown “mole” over her right eyebrow. The doctors said it wasn’t anything to worry about and she could have it removed later if it bothered her. I wish we would have had it removed and biopsied before it fell of during her toddler years. I […]

August 7, 2017

MCAS & GA: The Future Is Looking Pretty Grim

The Disease

I have somehow been blessed (ahem) with two rare diseases; MCAS and granuloma annulare, an inflammatory skin disease that just so happens to be mediated by tumor necrosis factor. From Patient.info: It (granuloma annulare) is thought to be due to a delayed hypersensitivity reaction to some part of the dermis with inflammation mediated by tumour […]

July 12, 2017

This Is Not A Life At All Really

The Struggle

Today I feel utterly defeated. I’m sure it will pass, but right now it feels like I have no hope whatsoever. None. I don’t even have a glimmer of hope on the horizon. My world has become very bleak and hopeless lately. I am in mast cell hell. Less than two hours ago I went […]

June 8, 2017

What Does It Feel Like To Have Mast Cell Disease?

The Struggle

The degranulation events are a huge part of living with mast cell disease, no doubt, and they dominate my every waking moment as I either struggle through them or obsessively try to keep them from happening in the first place. There’s so much more to living with mast cell disease than just the degranulation symptoms, […]

April 13, 2017

A Day In The Life: Still Dreading Spring

The Disease

I still haven’t fully embraced my diagnosis, obviously, or I wouldn’t be sitting here, looking out the window at the nearly finished chicken coop, thinking how much I wish winter would hold out and keep spring at bay for just a little while longer. I was certainly never like this before and I can directly […]

February 17, 2017

A Day In The Life: The Brutal Truth Of It All

The Disease

Part of the reason I started this website was to bring awareness to mast cell disease. I also wanted to share my own personal experiences as a patient/sufferer because from the first moment I learned about this disease, finding and reading forums and blog posts really helped me a lot more than anything else possibly […]

February 11, 2017