What Does Mast Cell Degranulation Feel Like?


The Disease

What does mast cell degranulation feel like? Regardless of how I am triggered (food, medicine, fumes, stress, etc) the symptoms are just about the same, to varying degrees. Sometimes I get a few and sometimes I get them all. This is a description of a “full blown” degranulation event (for me). The first thing I […]

November 27, 2017

Last Night I Woke Up In Degranulation Hell


The Struggle

Last night was possibly the scariest episode I’ve had yet, mostly because it jolted me out of a deep sleep and put me through the ringer for a few hours. It was a clear, cool night and the hubby had cracked our window open, not thinking at all that airborne triggers might find their way […]

May 9, 2017

MCAS & The Toxic Sweat (Yuck!)


The Symptoms

  I don’t know if this happens to anyone else but I coined the term “toxic sweat” a while back to describe what happens to me when I’m toward the end of a degranulation event. As I’m sitting here typing this, I can feel the sticky, odoriferous stuff just pouring from underneath my arms. It’s […]

April 21, 2017