Mast Cell Disease In The News: Two New Interesting Discoveries

The Science

A couple of interesting discoveries recently in the science and research aspect of mast cell disease starting with this piece about the relationship between mast cells and chronic urticaria (hives) from Australia: One in five people experience hives in their lifetime as an allergic reaction but a small number of people suffer hives, known as […]

July 16, 2017

MCAS & Anaphylaxis: To Epipen Or Not To Epipen?

The Treatments

I’ve had my epipens, or in my case the generic equivalent, for over a year now. Luckily I’ve never had to use them. I’ve even had to dispose of the first two and get new ones because they expired without me ever using them. I’ll probably (hopefully!) do the same for the ones I have […]

July 6, 2017

Mast Cell Disease: Leaker Vs. Shocker?

The Disease

Many mast cell disease patients refer to themselves as “leakers” or “shockers” in various places on the web. What do these terms mean? Everywhere I go, I find patients talking on forums, blog comments, etc., using these descriptions and after a bit of research I think I finally understand the difference between a “leaker” and […]

March 6, 2017

Mast Cell Disease In The News

The Disease

I’ve been seeing more MCAD stories in the news lately, although I am technically supposed to be avoiding the news at all cost because it stresses me out and stress is a major mast cell degranulation trigger. When I do cheat and peek, I’m always surprised to see articles on mast cell disease patients. I […]

February 16, 2017

Mast Cell Disease & Anaphylaxis: The Danger Is Very Real

The Symptoms

In all types of mast cell disease potentially fatal anaphylaxis can occur, and there are many triggers which can cause it which is why anyone with mast cell disorders of all kinds should probably already have two emergency auto-injectors, extra medicines on hand, a Medic Alert bracelet and also these handy MCAD forms all filled […]

February 13, 2017

Mast Cell Disease & Coexisting Conditions: There Are Many

The Disease

Many patients with mast cell disease also find themselves with coexisting conditions that may or may not be related to their dysfunctional mast cells (but usually are). In my case, I have both MCAD and granuloma annulare, a fairly rare skin condition that leaves ringworm looking rashes on me. I’ve found some pretty good evidence […]

February 12, 2017