I broke down and bought a twice-a-day pill organizer so I guess that means I have reached full acceptance that this is now my new reality.
I no longer feel the need to do things like skip my morning dose just to test myself to see if it’s all in my head or real or what. Despite owning mastcelldisease.com and having an actual diagnosis for a year now, I sometimes would wonder, am I really this sick?
Now I know.
Oh my god, I really am this sick.
I can’t even walk the dog very far without being triggered, as I learned the hard way (again) while out yesterday when I went about half a mile up the road and back, only to have a horrible mucus attack hit me just as I made my way back up the driveway.
The timing was almost comical and I’m so glad I turned around when I did! Thankfully I made it into the house before the worst of it hit.
I’ll spare you the details about what happens when I get a mucus attack (I’ll probably write a post about it in the future, though) but as you can imagine, I definitely don’t want to be in public when it happens. *I* don’t even like to be there when it happens and I sure don’t want an audience to witness it!
So I am forced, yet again, to find “safe alternatives” here at home.
Lucky for me I have a super sweet husband who doesn’t want me to give up working out so he decided to surprise me by turning one of our empty nest rooms into a home gym for me:
It’s not finished yet but I’m already excited. Up until now all the gym equipment has been scattered in various rooms and has went mostly unused for a very long time, except by the dogs who love to run on the treadmill.
I used to love to run on it, too. Now I have no excuse, really. Well, except, you know, unless my mast cells rebel, which they likely will. I have to be very careful how I work out now so running may be off the menu for good.
I do feel bad that I can’t really be of much help right now and he has to do things like all the painting himself but he doesn’t seem to mind at all. He is a fixer and has a very positive attitude which helps me immensely these days!
He’s really helping me to stay focused on the things I can do rather than the things I can’t.
He reminds me to just take it a day at a time.
He’s pretty awesome.