Mast Cell Disease In The News

I’ve been seeing more MCAD stories in the news lately, although I am technically supposed to be avoiding the news at all cost because it stresses me out and stress is a major mast cell degranulation trigger.

When I do cheat and peek, I’m always surprised to see articles on mast cell disease patients. I can’t say I’m happy to see them, because I’m not (although they do bring more awareness to this disease), like the one the Daily Mail is running now about a lady allergic to her husband AND the house he remodeled for her and her mast cells.

Or the one about poor Susan Mullins, a housewife who died of something that sounds suspiciously exactly like mast cell disease:

Housewife found dead and slumped over vacuum cleaner baffles experts over mysterious cause of death

Housewife Susan Mullins was found dead, slumped over her Hoover after mysteriously suffering an anaphylactic shock, an inquest has heard.

Normally associated with bee and wasp stings or allergies, the diagnosis was made by a coroner who heard that the 58-year-old was lying face-down over the electric carpet sweeper.

He said that the middle-aged mother suddenly collapsed when she suffered a mysterious allergic reaction while Hoovering at her home.

Scientists were unable to find the cause of the fatal anaphylactic shock which caused a dramatic fall in Mrs Mullins’ blood pressure.

An inquest into her death heard that the tragic mother’s body was found lying face-down over her Hoover at her home near Reading, Berks., on September 13 last year.

Berkshire coroner Peter Bedford said that there was no explanation for her “sudden collapse which was because of the use of the Hoover at the time.”

Again, another mother, friend, sister, wife, neighbor taken down by faulty mast cells (or most likely in her case). Again, I am so sad for her and her loved ones and I can’t help but think, again, that could be me. It could be any of my readers with MCAD or my son or anyone, really.

I find these stories quite regularly. I guess it’s like when you buy a new car and then you notice how many of those cars are on the road. Now I notice mast cell related news stories and of course I click. Sometimes I comment. From now on I’ll remember to share here, too.

None of them so far have touched me as much as the one I found last year about Angela Kendrick. She was out with her family enjoying herself and died after a wasp sting. She was very loved and looked like such a happy, lovely lady to be around. It was just so unfair!!

Angela’s story really upset me and I actually cried for a long time that day for her and her family. And then for myself. This was back when I first learned I had this disease and realized I could easily be her. At the same time I had just learned my son had it, too, and it could easily be him, as well!

We have been out camping and boating up here so many times near Yellowstone so far back in the woods that I would have never made it to a hospital in time had I been stung by a bee or wasp or triggered by whatever else back then. I had no idea all those years that my son and I both could have such bad reactions or that we need to carry two epipens at all times because of our own mast cell disease. We also need to wear Medic Alert bracelets and stay near emergency care, too, now, so that alters our lifestyle quite a bit.

Still, even though I live a reclusive life as a full-time housewife and stay safe in my bubble and have all the emergency tools in place, I could still end up like Angela or Susan. It’s quite depressing to know, really. My family, our family, could have been theirs. It’s just so cruel!!

This is a very scary, unpredictable disease, but again, stories like these underscore being informed, aware and prepared at all times. It’s really all we can do. Maybe hold our loved ones tighter because life is so very fragile.

Oh, and say a prayer for Angela and Susan’s families with me, too, won’t you? I’m sure they could use them.

 

xo Michelle Dellene

 

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