After lowering my doses of trigger-filled pills (even trace amounts are too much for me apparently!) I am feeling better in some ways and worse in others, which I sort of expected.
My allergy symptoms are coming right back so I’m sneezing and itching and have hives starting up but my inflammatory symptoms are down so my diverticulitis isn’t hurting near as much, which is welcome relief.
My brain inflammation, fainting and seizures are all still mostly in check, too, which is a total blessing. I can’t even tell you how negatively all that impacts my world. Even my gums stopped bleeding for a change so I can tell things are calming down inflammation-wise.
So I am now in limbo waiting to see the doctor and I thought while I wait I would try some natural treatments to kill it altogether. I have to do one thing at a time and it can take weeks to test a new therapy so I have to be very careful when taking on anything else because it can lead to degranulation hell for me and land me back in seizureville before I know what’s hit me and it’s so very harrrrd to break out of it.
I was going to start on the curcumin but then decided to hold off because I was going through pages I had saved looking for something on salicylates and turmeric and remembered I had originally wanted to try Neuroprotek.
What is Neuroprotek?
NeuroProtek® is a unique all natural oral dietary supplement in a soft gel capsule which may promote harmony in and between the mind and body. NeuroProtek® uses an exclusive combination of flavonoids, based on the published scientific research. NeuroProtek® is formulated to maximize effects of flavonoids while also overcoming any absorption obstacles. NeuroProtek® contains the flavonoids: Luteolin, Quercetin, and Rutin. Unique to Algonot’s family of formulations is olive kernel extract and flavonoids.
I meant to order it many months ago, back when I first found Dr. Theo’s video on ‘mast cell disease, brain allergy and autism’. It sounded so promising and I even bookmarked the website with the intention to go back and check the ingredients list in the slim hope that ALL of my triggers somehow managed to make it on the “not included” list.
Believe me, that just doesn’t happen for me. Everything has one of my worst three (milk, soy, corn) in them it seems. Everything except Neuroprotek!
I couldn’t believe it. Then I wanted to kick myself for not checking sooner. I am praying it might help me, and my dear, sweet son who is also suffering terribly with MCAD symptoms we just can’t get ahead of.
I am not just a desperate patient, I am a desperate mom, too!
I did some reading to see if these bioflavinoids are high in salicylates but the jury seems to be out on it. I did find this about the topic on an article written quite awhile ago:
In the past it was stated that quercitin, a compound found in bioflavonoids, was a salicylate. Now, it appears that this was a mistake. There are salicylates within the mixture of substances in the bioflavonoids from which it is derived, but pure quercitin itself is not a salicylate. As noted above, the purity of quercitin products is still uncertain at present, and therefore we have placed it among the “maybes”.
I do have salicylate issues (at least I think so) but I’m willing to try it. It is expensive (I paid $50 for 60 capsules and you are supposed to take 6 a day?!) so if it doesn’t work I am out a chunk of money and may potentially get worse for a bit, but that’s okay. If it does work?? Well…..
It’s hard not to get excited at the prospect. Either way it goes for both of us, I’ll update here, of course.
Update 9/17: I stopped taking the NeuroProtek after two days. You can read why here.