MCAS & Ketotifen: My Experiences So Far

The Treatments

If you’ve been following this blog long, you’ll know that I stopped taking most of my mast cell medications a few months ago and started over, using the principals Dr. Afrin lays out in his book. Yes it sounds mad, but in my case I had to do it, as scary as it was. Until […]

December 31, 2017

Ketotifen For MCAS: The Good, The Bad & The Drowsy

The Treatments

After weeks and weeks (and weeks) of waiting, and waiting some more, and nearly giving up, my local compound pharmacist finally came through for me. We came up with a brilliant solution for my unique problem of being triggered by dairy, soy AND corn (and a million other things they use even in compounded medicines […]

December 15, 2017

MCAS & Medication: Ketotifen Is Available in the US?

The Treatments

After trying several mast cell disease medications now, some with better luck than others, and after taking Dr. Afrin’s advice to heart about not giving up until I’ve exhausted ALL of the treatments available (and there are many!), I’m ready to try something new in hopes that it will bring me relief from the MCAS […]

October 12, 2017

MCAS & Medication: Dementia & Anticholinergic Drugs

The Treatments

If you’ve been reading this blog long you’ll know that I’ve been struggling with symptoms that mimic dementia (or actually are symptoms of dementia?) which I was attributing to brain inflammation and so-called brain fog brought on by the disease. Now I’m beginning to wonder if the H1 and H2 medicines I was taking daily […]

September 17, 2017

I Forgot That I Wanted To Try Neuroprotek!

The Treatments

After lowering my doses of trigger-filled pills (even trace amounts are too much for me apparently!) I am feeling better in some ways and worse in others, which I sort of expected. My allergy symptoms are coming right back so I’m sneezing and itching and have hives starting up but my inflammatory symptoms are down […]

August 23, 2017

MCAS & Anaphylaxis: To Epipen Or Not To Epipen?

The Treatments

I’ve had my epipens, or in my case the generic equivalent, for over a year now. Luckily I’ve never had to use them. I’ve even had to dispose of the first two and get new ones because they expired without me ever using them. I’ll probably (hopefully!) do the same for the ones I have […]

July 6, 2017

MCAS & Medical Marijuana: Can Cannabis Help Us?

The Treatments

I get a lot of search traffic asking about mast cell disease and marijuana or cannabis, and I was also curious about it myself, so I did a little research. I always like to go to the experts and since I am still reading (and reviewing!) Dr. Afrin’s book, Never Bet Against Occam, I thought […]

April 24, 2017