MCAS Q&A: Answering Your Questions (Oct. 8th, 2018)

The Community

Hi everyone! I am still trying to play catch up with my online life after being “off the grid” up by Yellowstone park with our adorable pack of Siberian Huskies for most of September (woohoo!), so please forgive me if you’ve emailed me during the last few weeks and not gotten a response. I am […]

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Just A Friendly Reminder…

The Management

There is hope for us all. No matter how bad it seems, you can get better. Much better. I know, because I am living proof. I am not alone, either. Many of us have found relief from the worst of our symptoms by finding therapies that work for us. It’s not quick and it’s not […]

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A Day In The Life… My September Sabbatical

The Lifestyle

Hi everyone! Just a quick update to let my dear readers know that I am alive and well (very well!) so I’ve been taking some time off this month to enjoy what is left of summer, getting myself and my sled dog team in shape for the upcoming winter (woo!). I appreciate all the emails […]

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MCAD Book Club Giveaway: Never Bet Against Occam: Mast Cell Activation Disease and the Modern Epidemics of Chronic Illness and Medical Complexity

Book Giveaway

As a big thank you to my readers and subscribers I am giving away one free paperback copy of Dr. Lawrence Afrin’s excellent, must-have book, Never Bet Against Occam. This is the book that changed my life and put me on the right path for treating my own mast cell dysfunction. Dr. Afrin has treated […]

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Just A Friendly Reminder…


The Management

There is hope for us all. No matter how bad it seems, you can get better. Much better. I know, because I am living proof. I am not alone, either. Many of us have found relief from the worst of our symptoms by finding therapies that work for us. It’s not quick and it’s not […]

October 6, 2018

Mast Cell Disease Research: Please Take The MCAS Survey!!


The Science

The experts over at the Mastocytosis Society have invited those of us who have been diagnosed with MCAS and/or familial alpha tryptasemia to take part in an important survey they are conducting in order to learn more about patient experiences with these diseases. From their website: We encourage all patients affected by MCAS and/or hereditary […]

August 20, 2018

Mast Cell Disease Awareness: I Am #Afflicted


The Struggle

I do my best to avoid known MCAS triggers, like stress and strong emotion, but some things just can’t be ignored. As you may or may not know by now, Netflix has a new series, Afflicted, that follows the lives of several chronically ill patients who apparently have everything from (so-called) chronic fatigue syndrome to […]

August 16, 2018