Mast Cell Disease Awareness: I Am #Afflicted

The Struggle

I do my best to avoid known MCAS triggers, like stress and strong emotion, but some things just can’t be ignored. As you may or may not know by now, Netflix has a new series, Afflicted, that follows the lives of several chronically ill patients who apparently have everything from (so-called) chronic fatigue syndrome to […]

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Mast Cell Disease Management: The High Price Of Having A Chronic Rare Disease

The Management

Anyone with mast cell disease already knows that living with a chronic, incurable illness takes a heavy toll on the patient and their loved ones. It affects us physically, emotionally and financially. We’re not alone, of course. Chronic illnesses are on the rise and they can be astronomically expensive to treat, according to the experts: […]

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MCAD & Malabsorption: How Intestinal Inflammation Affects Our Health

The Disease

One of the little discussed symptoms of mast cell activation is intestinal malabsorption. It can have a deleterious effect on our health and, if left unchecked, can prevent us from making progress with our disease despite following the recommendations for diet and lifestyle changes. From Healthline.com: The main role of your small intestine is to […]

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A Day In The Life… On The Rebound

The Management

Something I learned early on was to never, ever miss a dose of my antihistamines. If I did I was hit hard by the “rebound” effect which I had no idea existed with this disease. Of course, like everything else in my life, I had to learn the hard way. I first found relief by […]

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Mast Cell Disease Awareness: I Am #Afflicted


The Struggle

I do my best to avoid known MCAS triggers, like stress and strong emotion, but some things just can’t be ignored. As you may or may not know by now, Netflix has a new series, Afflicted, that follows the lives of several chronically ill patients who apparently have everything from (so-called) chronic fatigue syndrome to […]

August 16, 2018

A Day In The Life… On The Rebound


The Management

Something I learned early on was to never, ever miss a dose of my antihistamines. If I did I was hit hard by the “rebound” effect which I had no idea existed with this disease. Of course, like everything else in my life, I had to learn the hard way. I first found relief by […]

August 12, 2018

MCAD & Mental Health: Living In Chronic Isolation


The Struggle

Many of us describe our condition as being “allergic to the world” and many of us have had to severely limit our contact with society while creating a “safe bubble” to live within in order to keep our mast cells calm and less reactive. We often have to live in near or total isolation just […]

August 9, 2018

MCAD Real Patient Stories: Summer’s Story


The Community

It’s one thing to read about your disease from a medical text, but having a firsthand account of what others are experiencing can be incredibly validating and helpful. This is the goal of our new MCAD Real Patient Stories series. By sharing your personal journey of living with mastocytosis or MCAS you are helping the […]

August 6, 2018

MCAD Artist Spotlight: Vivian Sterns-Kohler


The Community

Welcome to our new MCAD Artist Spotlight series where I’ll be introducing you to artists with mast cell disease from around the world. Despite our disease, many of us are still finding ways to be creative and overcome our challenges in order to bring art and beauty into our lives and the lives of others. […]

August 3, 2018